82954-9  Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R  

PANEL HIERARCHY  (view this panel in the LForms viewer)

  LOINC#   LOINC Name R/O/C  Cardinality  Ex. UCUM Units 
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R    
       83129-7   Respondent typeRespondent typeRespondent type: Find: Pt: ^Patient: Nom: O    
       82940-8   Speech R 1..1   
       82941-6   Salivation R 1..1   
       82942-4   Swallowing R 1..1   
       82943-2   Handwriting R 1..1   
       82944-0   Cutting food and handling utensils (patients without gastronomy) C 1..1   
       82945-7   Cutting food and handling utensils (alternate scale for patients with gastrostomy)? C 1..1   
       82946-5   Dressing and hygiene R 1..1   
       82947-3   Turning in bed and adjusting bed clothes R 1..1   
       82948-1   Walking R 1..1   
       82949-9   Climbing stairs R 1..1   
       82950-7   Dyspnea R 1..1   
       82951-5   Orthopnea R 1..1   
       82952-3   Respiratory insufficiency R 1..1   
       82953-1   Total score [ALSFRS-R]Total score [ALSFRS-R]Total score: Score: Pt: ^Patient: Qn: ALSFRS-R R   {score} 
 

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R)  Pt  ^Patient  ALSFRS-R
  Long Common Name:  Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

COPYRIGHT NOTICE
Regeneron Pharmaceuticals Copyright notice;

TERM DEFINITION/DESCRIPTION(S)
  The ALS Functional Rating Scale - Revised is a physician-administered rating scale designed to measure and monitor the progression of disability in patients with amyotrophic lateral sclerosis. [PMID:10540002] The 12 items in the ALSFRS-R are rated on a 5-point scale, 0 to 4, with a maximum score of 48 indicating the highest level of functioning.
 
 

BASIC ATTRIBUTES
  Class/Type: PANEL.SURVEY.ALSFRSR/Survey
  Panel Type: Panel
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Both
  Status: Active

PARTS

Part Type    Part No.  Part Name   
Component   LP230021-0  Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R)   [Amyotrophic lateral sclerosis functional rating scale - revised] 
Property   LP6769-6 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7747-1 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP21059-8  Panel 
Fragments for synonyms   LP75923-0  R' 
Fragments for synonyms   LP33950-4  Lateral 
Fragments for synonyms   LP33952-0  R- 

RELATED NAMES
  Lat Panl R prime
  Pan Pnl Random
  Panel Point in time Right

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]
  Fully Specified Name: Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R
     
  Component Word Count: 0
  ID: 87439
  # of Panel Elements: 16
  Status (Raw): ACTIVE



Selected information about each LOINC that is part of this panel



83129-7   Respondent typeRespondent typeRespondent type: Find: Pt: ^Patient: Nom:  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Respondent type  Find  Pt  ^Patient  Nom 
  Long Common Name:  Respondent type

OBSERVATION REQUIRED IN PANEL
Optional

BASIC ATTRIBUTES
  Class/Type: SURVEY.GNHLTH/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

EXAMPLE ANSWER LIST    (LL4174-0)  
  SEQ#        Answer        Answer ID    
  1       Self       LA15312-4  
  2       Guardian       LA26831-0  

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP232636-3  Respondent type 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7750-5  Nom 

RELATED NAMES
  Finding Point in time  
  Findings Random  
  Nominal SURVEY.GNHLTH  

CHANGE HISTORY
  Change Type: ADD

INTERNAL FIELDS
  Long Common Name: Respondent type
  Fully Specified Name: Respondent type: Find: Pt: ^Patient: Nom:
     
  Component Word Count: 0
  ID: 87618
  Status (Raw): ACTIVE


82940-8   Speech [ALSFRS-R]Speech [ALSFRS-R]Speech: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Speech  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Speech [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4091-6)  
  SEQ#        Answer        Score        Answer ID    
  1       Normal speech processes       4       LA26567-0  
  2       Detectable speech disturbance       3       LA26568-8  
  3       Intelligible with repeating       2       LA26569-6  
  4       Speech combined with nonvocal communication       1       LA26570-4  
  5       Loss of useful speech       0       LA26571-2  

SURVEY QUESTION
Text: Speech
Source: 1

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP121781-1  Speech 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Speech [ALSFRS-R]
  Fully Specified Name: Speech: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87425
  Status (Raw): ACTIVE


82941-6   Salivation [ALSFRS-R]Salivation [ALSFRS-R]Salivation: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Salivation  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Salivation [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4170-8)  
  SEQ#        Answer        Score        Answer ID    
  1       Normal       4       LA6626-1  
  2       Slight but definite excess of saliva in mouth; may have nighttime drooling       3       LA23498-1  
  3       Moderately excessive saliva; may have minimal drooling       2       LA23499-9  
  4       Marked excess of saliva with some drooling       1       LA23500-4  
  5       Marked drooling, requires constant tissue or handkerchief       0       LA23501-2  

SURVEY QUESTION
Text: Salivation
Source: 2

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230011-1  Salivation 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Salivation [ALSFRS-R]
  Fully Specified Name: Salivation: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87426
  Status (Raw): ACTIVE


82942-4   Swallowing [ALSFRS-R]Swallowing [ALSFRS-R]Swallowing: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Swallowing  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Swallowing [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4092-4)  
  SEQ#        Answer        Score        Answer ID    
  1       Normal eating habits       4       LA26573-8  
  2       Early eating problems - occasional choking       3       LA26574-6  
  3       Dietary consistency changes       2       LA26575-3  
  4       Needs supplemental tube feeding       1       LA26576-1  
  5       NPO (exclusively parenteral or enteral feeding)       0       LA26577-9  

SURVEY QUESTION
Text: Swallowing
Source: 3

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP75702-8  Swallowing 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP91352-2  Swallowing 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Deglutition QL Right
  Finding Qual Screen
  Findings Qualitative  
  Ordinal R prime  
  Point in time Random  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Swallowing [ALSFRS-R]
  Fully Specified Name: Swallowing: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87427
  Status (Raw): ACTIVE


82943-2   Handwriting [ALSFRS-R]Handwriting [ALSFRS-R]Handwriting: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Handwriting  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Handwriting [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4093-2)  
  SEQ#        Answer        Score        Answer ID    
  1       Normal       4       LA6626-1  
  2       Slow or sloppy, all words are legible       3       LA26578-7  
  3       Not all words are legible       2       LA26579-5  
  4       Able to grip pen but unable to write       1       LA26580-3  
  5       Unable to grip pen       0       LA26581-1  

SURVEY QUESTION
Text: Handwriting
Source: 4

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230012-9  Handwriting 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Handwriting [ALSFRS-R]
  Fully Specified Name: Handwriting: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87428
  Status (Raw): ACTIVE


82944-0   Cutting food and handling utensils (patients without gastrostomy) [ALSFRS-R]Cutting food and handling utensils (patients without gastrostomy) [ALSFRS-R]Cutting food and handling utensils (patients without gastrostomy): Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Cutting food and handling utensils (patients without gastrostomy)  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Cutting food and handling utensils (patients without gastrostomy) [ALSFRS-R]

CONDITION FOR INCLUSION
For patients without gastrostomy

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Conditional

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4171-6)  
  SEQ#        Answer        Score        Answer ID    
  1       Normal       4       LA6626-1  
  2       Somewhat slow and clumsy, but no help needed       3       LA23511-1  
  3       Can cut most foods, although clumsy and slow; some help needed       2       LA23584-8  
  4       Food must be cut by someone, but can still feed slowly       1       LA23513-7  
  5       Needs to be fed       0       LA23514-5  

SURVEY QUESTION
Text: Cutting food and handling utensils (patients without gastronomy)
Source: 5a

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230013-7  Cutting food and handling utensils (patients without gastrostomy) 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Cut food wo gastronomy QL Right
  Finding Qual Screen
  Findings Qualitative  
  Ordinal R prime  
  Point in time Random  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Cutting food and handling utensils (patients without gastrostomy) [ALSFRS-R]
  Fully Specified Name: Cutting food and handling utensils (patients without gastrostomy): Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87429
  Status (Raw): ACTIVE


82945-7   Cutting food and handling utensils (patients with gastrostomy) [ALSFRS-R]Cutting food and handling utensils (patients with gastrostomy) [ALSFRS-R]Cutting food and handling utensils (patients with gastrostomy): Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Cutting food and handling utensils (patients with gastrostomy)  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Cutting food and handling utensils (patients with gastrostomy) [ALSFRS-R]

CONDITION FOR INCLUSION
For patients with gastrostomy

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Conditional

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4094-0)  
  SEQ#        Answer        Score        Answer ID    
  1       Normal       4       LA6626-1  
  2       Clumsy but able to perform all manipulations independently       3       LA26584-5  
  3       Some help needed with closures and fasteners       2       LA26585-2  
  4       Provides minimal assistance to caregiver       1       LA26586-0  
  5       Unable to perform any aspect of task       0       LA26587-8  

SURVEY QUESTION
Text: Cutting food and handling utensils (alternate scale for patients with gastrostomy)?
Source: 5b

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230014-5  Cutting food and handling utensils (patients with gastrostomy) 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Cut food w gastronomy QL Right
  Finding Qual Screen
  Findings Qualitative  
  Ordinal R prime  
  Point in time Random  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Cutting food and handling utensils (patients with gastrostomy) [ALSFRS-R]
  Fully Specified Name: Cutting food and handling utensils (patients with gastrostomy): Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87430
  Status (Raw): ACTIVE


82946-5   Dressing and hygiene [ALSFRS-R]Dressing and hygiene [ALSFRS-R]Dressing and hygiene: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Dressing and hygiene  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Dressing and hygiene [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4095-7)  
  SEQ#        Answer        Score        Answer ID    
  1       Normal function       4       LA25393-2  
  2       Independent and complete self-care with effort or decreased efficiency       3       LA26588-6  
  3       Intermittent assistance or substitute methods       2       LA26589-4  
  4       Needs attendant for self-care       1       LA26590-2  
  5       Total dependence       0       LA114-1  

SURVEY QUESTION
Text: Dressing and hygiene
Source: 6

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230015-2  Dressing and hygiene 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Dressing&hygiene QL Right
  Finding Qual Screen
  Findings Qualitative  
  Ordinal R prime  
  Point in time Random  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Dressing and hygiene [ALSFRS-R]
  Fully Specified Name: Dressing and hygiene: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87431
  Status (Raw): ACTIVE


82947-3   Turning in bed and adjusting bed clothes [ALSFRS-R]Turning in bed and adjusting bed clothes [ALSFRS-R]Turning in bed and adjusting bed clothes: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Turning in bed and adjusting bed clothes  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Turning in bed and adjusting bed clothes [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4168-2)  
  SEQ#        Answer        Score        Answer ID    
  0       Normal       4       LA6626-1  
  1       Somewhat slow and clumsy, but no help needed       3       LA23511-1  
  2       Can turn alone or adjust sheets, but with great difficulty       2       LA23523-6  
  3       Can initiate, but not turn or adjust sheets alone       1       LA23524-4  
  4       Helpless       0       LA23525-1  

SURVEY QUESTION
Text: Turning in bed and adjusting bed clothes
Source: 7

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230016-0  Turning in bed and adjusting bed clothes 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding Qual Screen
  Findings Qualitative Turn in bed
  Ordinal R prime  
  Point in time Random  
  QL Right  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Turning in bed and adjusting bed clothes [ALSFRS-R]
  Fully Specified Name: Turning in bed and adjusting bed clothes: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87432
  Status (Raw): ACTIVE


82948-1   Walking [ALSFRS-R]Walking [ALSFRS-R]Walking: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Walking  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Walking [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4097-3)  
  SEQ#        Answer        Score        Answer ID    
  1       Normal       4       LA6626-1  
  2       Early ambulation difficulties       3       LA26591-0  
  3       Walks with assistance       2       LA26592-8  
  4       Nonambulatory functional movement       1       LA26593-6  
  5       No purposeful leg movement       0       LA26594-4  

SURVEY QUESTION
Text: Walking
Source: 8

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230017-8  Walking 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Walking [ALSFRS-R]
  Fully Specified Name: Walking: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87433
  Status (Raw): ACTIVE


82949-9   Climbing stairs [ALSFRS-R]Climbing stairs [ALSFRS-R]Climbing stairs: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Climbing stairs  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Climbing stairs [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4099-9)  
  SEQ#        Answer        Score        Answer ID    
  1       Normal       4       LA6626-1  
  2       Slow       3       LA24898-1  
  3       Mild unsteadiness or fatigue       2       LA26595-1  
  4       Needs assistance       1       LA26596-9  
  5       Cannot do       0       LA13868-7  

SURVEY QUESTION
Text: Climbing stairs
Source: 9

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230018-6  Climbing stairs 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Climbing stairs [ALSFRS-R]
  Fully Specified Name: Climbing stairs: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87434
  Status (Raw): ACTIVE


82950-7   Dyspnea [ALSFRS-R]Dyspnea [ALSFRS-R]Dyspnea: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Dyspnea  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Dyspnea [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4100-5)  
  SEQ#        Answer        Score        Answer ID    
  1       None       4       LA137-2  
  2       Occurs when walking       3       LA26597-7  
  3       Occurs with one or more of the following: eating, bathing, dressing (ADL)       2       LA26598-5  
  4       Occurs at rest, difficulty breathing when either sitting or lying       1       LA26599-3  
  5       Significant difficulty, considering using mechanical respiratory support       0       LA26600-9  

SURVEY QUESTION
Text: Dyspnea
Source: 10

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP115812-2  Dyspnea 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Dyspnea [ALSFRS-R]
  Fully Specified Name: Dyspnea: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87435
  Status (Raw): ACTIVE


82951-5   Orthopnea [ALSFRS-R]Orthopnea [ALSFRS-R]Orthopnea: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Orthopnea  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Orthopnea [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4101-3)  
  SEQ#        Answer        Score        Answer ID    
  1       None       4       LA137-2  
  2       Some difficulty sleeping at night due to shortness of breath, does not routinely use more than two pillows       3       LA26601-7  
  3       Needs extra pillows in order to sleep (more than two)       2       LA26602-5  
  4       Can only sleep sitting up       1       LA26603-3  
  5       Unable to sleep       0       LA15849-5  

SURVEY QUESTION
Text: Orthopnea
Source: 11

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230019-4  Orthopnea 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Orthopnea [ALSFRS-R]
  Fully Specified Name: Orthopnea: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87436
  Status (Raw): ACTIVE


82952-3   Respiratory insufficiency [ALSFRS-R]Respiratory insufficiency [ALSFRS-R]Respiratory insufficiency: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Respiratory insufficiency  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Respiratory insufficiency [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4102-1)  
  SEQ#        Answer        Score        Answer ID    
  1       None       4       LA137-2  
  2       Intermittent use of BiPAP       3       LA26604-1  
  3       Continuous use of BiPAP during the night       2       LA26605-8  
  4       Continuous use of BiPAP during the night and day       1       LA26606-6  
  5       Invasive mechanical ventilation by intubation or tracheostomy       0       LA26607-4  

SURVEY QUESTION
Text: Respiratory insufficiency
Source: 12

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230020-2  Respiratory insufficiency 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Respiratory insufficiency [ALSFRS-R]
  Fully Specified Name: Respiratory insufficiency: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87437
  Status (Raw): ACTIVE


82953-1   Total score [ALSFRS-R]Total score [ALSFRS-R]Total score: Score: Pt: ^Patient: Qn: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Total score  Score  Pt  ^Patient  Qn  ALSFRS-R
  Long Common Name:  Total score [ALSFRS-R]

TERM DEFINITION/DESCRIPTION(S)
  The 12 items in the ALSFRS-R are rated on a 5-point scale, 0 to 4, with a maximum score of 48 indicating the highest level of functioning. There is not information on the clinical interpretation of scores (i.e. a score in this range is classified as this level of functioning), but there is some evidence that scores are predictive of 9-month survival (90% for patients with scores over 30; 76% for patients with scores under 30). [PMID:10540002]
 
 

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP101867-2  Total score 
Property   LP185820-0  Score 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7753-9  Qn 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 
Fragments for synonyms   LP21089-5  Total 

RELATED NAMES
  Point in time Quantitative Scale
  QNT R prime Tot
  Quan Random Totl
  Quant Right  

EXAMPLE UNITS
  Unit  Source Type
  {score}  EXAMPLE UCUM UNITS 

UNITS (INTERNAL DETAILS)
  Source Type:  EXAMPLE UCUM UNITS 
  Unit:  {score} 

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Total score [ALSFRS-R]
  Fully Specified Name: Total score: Score: Pt: ^Patient: Qn: ALSFRS-R
     
  Component Word Count: 0
  ID: 87438
  Status (Raw): ACTIVE

COPYRIGHT
  Organization:Regeneron Pharmaceuticals
  Copyright:Copyright © 1996 Regeneron Pharmaceuticals.
  Terms of Use:Used with permission.