82954-9  Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R  

PANEL HIERARCHY  (view this panel in the LForms viewer)

  LOINC#   LOINC Name R/O/C  Cardinality  Ex. UCUM Units 
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R    
       83129-7   Respondent typeRespondent typeRespondent type: Find: Pt: ^Patient: Nom: O    
       82940-8   Speech R 1..1   
       82941-6   Salivation R 1..1   
       82942-4   Swallowing R 1..1   
       82943-2   Handwriting R 1..1   
       82944-0   Cutting food and handling utensils (patients without gastronomy) C 1..1   
       82945-7   Cutting food and handling utensils (alternate scale for patients with gastrostomy)? C 1..1   
       82946-5   Dressing and hygiene R 1..1   
       82947-3   Turning in bed and adjusting bed clothes R 1..1   
       82948-1   Walking R 1..1   
       82949-9   Climbing stairs R 1..1   
       82950-7   Dyspnea R 1..1   
       82951-5   Orthopnea R 1..1   
       82952-3   Respiratory insufficiency R 1..1   
       82953-1   Total score [ALSFRS-R]Total score [ALSFRS-R]Total score: Score: Pt: ^Patient: Qn: ALSFRS-R R   {score} 
 

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R)  Pt  ^Patient  ALSFRS-R
  Long Common Name:  Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

COPYRIGHT NOTICE
Regeneron Pharmaceuticals Copyright notice;

TERM DEFINITION/DESCRIPTION(S)
  The ALS Functional Rating Scale - Revised is a physician-administered rating scale designed to measure and monitor the progression of disability in patients with amyotrophic lateral sclerosis. [PMID:10540002] The 12 items in the ALSFRS-R are rated on a 5-point scale, 0 to 4, with a maximum score of 48 indicating the highest level of functioning.
 
 

BASIC ATTRIBUTES
  Class/Type: PANEL.SURVEY.ALSFRSR/Survey
  Panel Type: Panel
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Both
  Status: Active

PARTS

Part Type    Part No.  Part Name   
Component   LP230021-0  Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R)   [Amyotrophic lateral sclerosis functional rating scale - revised] 
Property   LP6769-6 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7747-1 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP21059-8  Panel 
Fragments for synonyms   LP75923-0  R' 
Fragments for synonyms   LP33950-4  Lateral 
Fragments for synonyms   LP33952-0  R- 

RELATED NAMES
  Lat Panl R prime
  Pan Pnl Random
  Panel Point in time Right

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]
  Fully Specified Name: Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R
     
  Component Word Count: 0
  ID: 87439
  # of Panel Elements: 16
  Status (Raw): ACTIVE



Selected information about each LOINC that is part of this panel



83129-7   Respondent typeRespondent typeRespondent type: Find: Pt: ^Patient: Nom:  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Respondent type  Find  Pt  ^Patient  Nom 
  Long Common Name:  Respondent type

OBSERVATION REQUIRED IN PANEL
Optional

BASIC ATTRIBUTES
  Class/Type: SURVEY.GNHLTH/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

EXAMPLE ANSWER LIST    (LL4174-0)  
 
Source: Regenstrief LOINC
  SEQ#        Answer        Answer ID    
  1       Self       LA15312-4  
  2       Guardian       LA26831-0  

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP232636-3  Respondent type 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7750-5  Nom 

RELATED NAMES
  Finding Point in time  
  Findings Random  
  Nominal SURVEY.GNHLTH  

CHANGE HISTORY
  Change Type: ADD

INTERNAL FIELDS
  Long Common Name: Respondent type
  Fully Specified Name: Respondent type: Find: Pt: ^Patient: Nom:
     
  Component Word Count: 0
  ID: 87618
  Status (Raw): ACTIVE


82940-8   Speech [ALSFRS-R]Speech [ALSFRS-R]Speech: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Speech  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Speech [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4091-6)  
 
Source: Regeneron Pharmaceuticals
  SEQ#        Answer        Score        Answer ID    
  1       Normal speech processes       4       LA26567-0  
  2       Detectable speech disturbance       3       LA26568-8  
  3       Intelligible with repeating       2       LA26569-6  
  4       Speech combined with nonvocal communication       1       LA26570-4  
  5       Loss of useful speech       0       LA26571-2  

SURVEY QUESTION
Text: Speech
Source: 1

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP121781-1  Speech 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Speech [ALSFRS-R]
  Fully Specified Name: Speech: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87425
  Status (Raw): ACTIVE


82941-6   Salivation [ALSFRS-R]Salivation [ALSFRS-R]Salivation: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Salivation  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Salivation [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4170-8)  
 
Source: Regeneron Pharmaceuticals
  SEQ#        Answer        Score        Answer ID    
  1       Normal
SNOMEDCT ©: 17621005 Normal (qualifier value)    
  4       LA6626-1  
  2       Slight but definite excess of saliva in mouth; may have nighttime drooling       3       LA23498-1  
  3       Moderately excessive saliva; may have minimal drooling       2       LA23499-9  
  4       Marked excess of saliva with some drooling       1       LA23500-4  
  5       Marked drooling, requires constant tissue or handkerchief       0       LA23501-2  

SURVEY QUESTION
Text: Salivation
Source: 2

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230011-1  Salivation 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Salivation [ALSFRS-R]
  Fully Specified Name: Salivation: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87426
  Status (Raw): ACTIVE


82942-4   Swallowing [ALSFRS-R]Swallowing [ALSFRS-R]Swallowing: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Swallowing  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Swallowing [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4092-4)  
 
Source: Regeneron Pharmaceuticals
  SEQ#        Answer        Score        Answer ID    
  1       Normal eating habits       4       LA26573-8  
  2       Early eating problems - occasional choking       3       LA26574-6  
  3       Dietary consistency changes       2       LA26575-3  
  4       Needs supplemental tube feeding       1       LA26576-1  
  5       NPO (exclusively parenteral or enteral feeding)       0       LA26577-9  

SURVEY QUESTION
Text: Swallowing
Source: 3

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP75702-8  Swallowing 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP91352-2  Swallowing 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Deglutition QL Right
  Finding Qual Screen
  Findings Qualitative  
  Ordinal R prime  
  Point in time Random  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Swallowing [ALSFRS-R]
  Fully Specified Name: Swallowing: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87427
  Status (Raw): ACTIVE


82943-2   Handwriting [ALSFRS-R]Handwriting [ALSFRS-R]Handwriting: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Handwriting  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Handwriting [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4093-2)  
 
Source: Regeneron Pharmaceuticals
  SEQ#        Answer        Score        Answer ID    
  1       Normal
SNOMEDCT ©: 17621005 Normal (qualifier value)    
  4       LA6626-1  
  2       Slow or sloppy, all words are legible       3       LA26578-7  
  3       Not all words are legible       2       LA26579-5  
  4       Able to grip pen but unable to write       1       LA26580-3  
  5       Unable to grip pen       0       LA26581-1  

SURVEY QUESTION
Text: Handwriting
Source: 4

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230012-9  Handwriting 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Handwriting [ALSFRS-R]
  Fully Specified Name: Handwriting: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87428
  Status (Raw): ACTIVE


82944-0   Cutting food and handling utensils (patients without gastrostomy) [ALSFRS-R]Cutting food and handling utensils (patients without gastrostomy) [ALSFRS-R]Cutting food and handling utensils (patients without gastrostomy): Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Cutting food and handling utensils (patients without gastrostomy)  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Cutting food and handling utensils (patients without gastrostomy) [ALSFRS-R]

CONDITION FOR INCLUSION
For patients without gastrostomy

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Conditional

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4171-6)  
 
Source: Regeneron Pharmaceuticals
  SEQ#        Answer        Score        Answer ID    
  1       Normal
SNOMEDCT ©: 17621005 Normal (qualifier value)    
  4       LA6626-1  
  2       Somewhat slow and clumsy, but no help needed       3       LA23511-1  
  3       Can cut most foods, although clumsy and slow; some help needed       2       LA23584-8  
  4       Food must be cut by someone, but can still feed slowly       1       LA23513-7  
  5       Needs to be fed       0       LA23514-5  

SURVEY QUESTION
Text: Cutting food and handling utensils (patients without gastronomy)
Source: 5a

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230013-7  Cutting food and handling utensils (patients without gastrostomy) 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Cut food wo gastronomy QL Right
  Finding Qual Screen
  Findings Qualitative  
  Ordinal R prime  
  Point in time Random  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Cutting food and handling utensils (patients without gastrostomy) [ALSFRS-R]
  Fully Specified Name: Cutting food and handling utensils (patients without gastrostomy): Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87429
  Status (Raw): ACTIVE


82945-7   Cutting food and handling utensils (patients with gastrostomy) [ALSFRS-R]Cutting food and handling utensils (patients with gastrostomy) [ALSFRS-R]Cutting food and handling utensils (patients with gastrostomy): Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Cutting food and handling utensils (patients with gastrostomy)  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Cutting food and handling utensils (patients with gastrostomy) [ALSFRS-R]

CONDITION FOR INCLUSION
For patients with gastrostomy

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Conditional

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4094-0)  
 
Source: Regeneron Pharmaceuticals
  SEQ#        Answer        Score        Answer ID    
  1       Normal
SNOMEDCT ©: 17621005 Normal (qualifier value)    
  4       LA6626-1  
  2       Clumsy but able to perform all manipulations independently       3       LA26584-5  
  3       Some help needed with closures and fasteners       2       LA26585-2  
  4       Provides minimal assistance to caregiver       1       LA26586-0  
  5       Unable to perform any aspect of task       0       LA26587-8  

SURVEY QUESTION
Text: Cutting food and handling utensils (alternate scale for patients with gastrostomy)?
Source: 5b

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230014-5  Cutting food and handling utensils (patients with gastrostomy) 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Cut food w gastronomy QL Right
  Finding Qual Screen
  Findings Qualitative  
  Ordinal R prime  
  Point in time Random  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Cutting food and handling utensils (patients with gastrostomy) [ALSFRS-R]
  Fully Specified Name: Cutting food and handling utensils (patients with gastrostomy): Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87430
  Status (Raw): ACTIVE


82946-5   Dressing and hygiene [ALSFRS-R]Dressing and hygiene [ALSFRS-R]Dressing and hygiene: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Dressing and hygiene  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Dressing and hygiene [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4095-7)  
 
Source: Regeneron Pharmaceuticals
  SEQ#        Answer        Score        Answer ID    
  1       Normal function       4       LA25393-2  
  2       Independent and complete self-care with effort or decreased efficiency       3       LA26588-6  
  3       Intermittent assistance or substitute methods       2       LA26589-4  
  4       Needs attendant for self-care       1       LA26590-2  
  5       Total dependence       0       LA114-1  

SURVEY QUESTION
Text: Dressing and hygiene
Source: 6

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230015-2  Dressing and hygiene 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Dressing&hygiene QL Right
  Finding Qual Screen
  Findings Qualitative  
  Ordinal R prime  
  Point in time Random  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Dressing and hygiene [ALSFRS-R]
  Fully Specified Name: Dressing and hygiene: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87431
  Status (Raw): ACTIVE


82947-3   Turning in bed and adjusting bed clothes [ALSFRS-R]Turning in bed and adjusting bed clothes [ALSFRS-R]Turning in bed and adjusting bed clothes: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Turning in bed and adjusting bed clothes  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Turning in bed and adjusting bed clothes [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4168-2)  
 
Source: Regeneron Pharmaceuticals
  SEQ#        Answer        Score        Answer ID    
  0       Normal
SNOMEDCT ©: 17621005 Normal (qualifier value)    
  4       LA6626-1  
  1       Somewhat slow and clumsy, but no help needed       3       LA23511-1  
  2       Can turn alone or adjust sheets, but with great difficulty       2       LA23523-6  
  3       Can initiate, but not turn or adjust sheets alone       1       LA23524-4  
  4       Helpless       0       LA23525-1  

SURVEY QUESTION
Text: Turning in bed and adjusting bed clothes
Source: 7

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230016-0  Turning in bed and adjusting bed clothes 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding Qual Screen
  Findings Qualitative Turn in bed
  Ordinal R prime  
  Point in time Random  
  QL Right  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Turning in bed and adjusting bed clothes [ALSFRS-R]
  Fully Specified Name: Turning in bed and adjusting bed clothes: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87432
  Status (Raw): ACTIVE


82948-1   Walking [ALSFRS-R]Walking [ALSFRS-R]Walking: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Walking  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Walking [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4097-3)  
 
Source: Regeneron Pharmaceuticals
  SEQ#        Answer        Score        Answer ID    
  1       Normal
SNOMEDCT ©: 17621005 Normal (qualifier value)    
  4       LA6626-1  
  2       Early ambulation difficulties       3       LA26591-0  
  3       Walks with assistance       2       LA26592-8  
  4       Nonambulatory functional movement       1       LA26593-6  
  5       No purposeful leg movement       0       LA26594-4  

SURVEY QUESTION
Text: Walking
Source: 8

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230017-8  Walking 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Walking [ALSFRS-R]
  Fully Specified Name: Walking: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87433
  Status (Raw): ACTIVE


82949-9   Climbing stairs [ALSFRS-R]Climbing stairs [ALSFRS-R]Climbing stairs: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Climbing stairs  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Climbing stairs [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4099-9)  
 
Source: Regeneron Pharmaceuticals
  SEQ#        Answer        Score        Answer ID    
  1       Normal
SNOMEDCT ©: 17621005 Normal (qualifier value)    
  4       LA6626-1  
  2       Slow       3       LA24898-1  
  3       Mild unsteadiness or fatigue       2       LA26595-1  
  4       Needs assistance       1       LA26596-9  
  5       Cannot do       0       LA13868-7  

SURVEY QUESTION
Text: Climbing stairs
Source: 9

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230018-6  Climbing stairs 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Climbing stairs [ALSFRS-R]
  Fully Specified Name: Climbing stairs: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87434
  Status (Raw): ACTIVE


82950-7   Dyspnea [ALSFRS-R]Dyspnea [ALSFRS-R]Dyspnea: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Dyspnea  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Dyspnea [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4100-5)  
 
Source: Regeneron Pharmaceuticals
  SEQ#        Answer        Score        Answer ID    
  1       None
SNOMEDCT ©: 260413007 None (qualifier value)    
  4       LA137-2  
  2       Occurs when walking       3       LA26597-7  
  3       Occurs with one or more of the following: eating, bathing, dressing (ADL)       2       LA26598-5  
  4       Occurs at rest, difficulty breathing when either sitting or lying       1       LA26599-3  
  5       Significant difficulty, considering using mechanical respiratory support       0       LA26600-9  

SURVEY QUESTION
Text: Dyspnea
Source: 10

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP115812-2  Dyspnea 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Dyspnea [ALSFRS-R]
  Fully Specified Name: Dyspnea: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87435
  Status (Raw): ACTIVE


82951-5   Orthopnea [ALSFRS-R]Orthopnea [ALSFRS-R]Orthopnea: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Orthopnea  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Orthopnea [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4101-3)  
 
Source: Regeneron Pharmaceuticals
  SEQ#        Answer        Score        Answer ID    
  1       None
SNOMEDCT ©: 260413007 None (qualifier value)    
  4       LA137-2  
  2       Some difficulty sleeping at night due to shortness of breath, does not routinely use more than two pillows       3       LA26601-7  
  3       Needs extra pillows in order to sleep (more than two)       2       LA26602-5  
  4       Can only sleep sitting up       1       LA26603-3  
  5       Unable to sleep       0       LA15849-5  

SURVEY QUESTION
Text: Orthopnea
Source: 11

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230019-4  Orthopnea 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Orthopnea [ALSFRS-R]
  Fully Specified Name: Orthopnea: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87436
  Status (Raw): ACTIVE


82952-3   Respiratory insufficiency [ALSFRS-R]Respiratory insufficiency [ALSFRS-R]Respiratory insufficiency: Find: Pt: ^Patient: Ord: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Respiratory insufficiency  Find  Pt  ^Patient  Ord  ALSFRS-R
  Long Common Name:  Respiratory insufficiency [ALSFRS-R]

ANSWER CARDINALITY
1..1

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

NORMATIVE ANSWER LIST    (LL4102-1)  
 
Source: Regeneron Pharmaceuticals
  SEQ#        Answer        Score        Answer ID    
  1       None
SNOMEDCT ©: 260413007 None (qualifier value)    
  4       LA137-2  
  2       Intermittent use of BiPAP       3       LA26604-1  
  3       Continuous use of BiPAP during the night       2       LA26605-8  
  4       Continuous use of BiPAP during the night and day       1       LA26606-6  
  5       Invasive mechanical ventilation by intubation or tracheostomy       0       LA26607-4  

SURVEY QUESTION
Text: Respiratory insufficiency
Source: 12

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP230020-2  Respiratory insufficiency 
Property   LP6813-2  Find   [Finding] 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7751-3  Ord 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 

RELATED NAMES
  Finding QL Random
  Findings Qual Right
  Ordinal Qualitative Screen
  Point in time R prime  

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Respiratory insufficiency [ALSFRS-R]
  Fully Specified Name: Respiratory insufficiency: Find: Pt: ^Patient: Ord: ALSFRS-R
     
  Component Word Count: 0
  ID: 87437
  Status (Raw): ACTIVE


82953-1   Total score [ALSFRS-R]Total score [ALSFRS-R]Total score: Score: Pt: ^Patient: Qn: ALSFRS-R  

NAME
  Fully-Specified Name: 
Component   Property   Time   System   Scale   Method
Total score  Score  Pt  ^Patient  Qn  ALSFRS-R
  Long Common Name:  Total score [ALSFRS-R]

TERM DEFINITION/DESCRIPTION(S)
  The 12 items in the ALSFRS-R are rated on a 5-point scale, 0 to 4, with a maximum score of 48 indicating the highest level of functioning. There is not information on the clinical interpretation of scores (i.e. a score in this range is classified as this level of functioning), but there is some evidence that scores are predictive of 9-month survival (90% for patients with scores over 30; 76% for patients with scores under 30). [PMID:10540002]
 
 

OBSERVATION REQUIRED IN PANEL
Required

BASIC ATTRIBUTES
  Class/Type: SURVEY.ALSFRSR/Survey
  First Released in Version: 2.58
  Last Updated in Version: 2.58
  Order vs. Obs.: Observation
  Status: Active

MEMBER OF THESE PANELS
  82954-9   Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]Amyotrophic lateral sclerosis functional rating scale - revised (ALSFRS-R): -: Pt: ^Patient: -: ALSFRS-R

PARTS

Part Type    Part No.  Part Name   
Component   LP101867-2  Total score 
Property   LP185820-0  Score 
Time   LP6960-1  Pt   [Point in time (spot)] 
Super System   LP6985-8  Patient 
Scale   LP7753-9  Qn 
Method   LP230009-5  ALSFRS-R 
Fragments for synonyms   LP33952-0  R- 
Fragments for synonyms   LP75923-0  R' 
Fragments for synonyms   LP21089-5  Total 

RELATED NAMES
  Point in time Quantitative Scale
  QNT R prime Tot
  Quan Random Totl
  Quant Right  

EXAMPLE UNITS
  Unit  Source Type
  {score}  EXAMPLE UCUM UNITS 

UNITS (INTERNAL DETAILS)
  Source Type:  EXAMPLE UCUM UNITS 
  Unit:  {score} 

CHANGE HISTORY
  Change Type: ADD

OBSOLETE FIELDS
  External Copyright Notice: Copyright © 1996 Regeneron Pharmaceuticals. Used with permission.

INTERNAL FIELDS
  Long Common Name: Total score [ALSFRS-R]
  Fully Specified Name: Total score: Score: Pt: ^Patient: Qn: ALSFRS-R
     
  Component Word Count: 0
  ID: 87438
  Status (Raw): ACTIVE

3rd PARTY COPYRIGHT
  Code System: http://snomed.info/sct
  This material includes SNOMED Clinical Terms® (SNOMED CT®) which is used by permission of the International Health Terminology Standards Development Organisation (IHTSDO) under license. All rights reserved. SNOMED CT® was originally created by The College of American Pathologists. “SNOMED” and “SNOMED CT” are registered trademarks of the IHTSDO.

This material includes content from the US Edition to SNOMED CT, which is developed and maintained by the U.S. National Library of Medicine and is available to authorized UMLS Metathesaurus Licensees from the UTS Downloads site at https://uts.nlm.nih.gov.

Use of SNOMED CT content is subject to the terms and conditions set forth in the SNOMED CT Affiliate License Agreement. It is the responsibility of those implementing this product to ensure they are appropriately licensed and for more information on the license, including how to register as an Affiliate Licensee, please refer to http://www.snomed.org/snomed-ct/get-snomed-ct or info@snomed.org. This may incur a fee in SNOMED International non-Member countries.
 

COPYRIGHT
  Organization:Regeneron Pharmaceuticals
  Copyright:Copyright © 1996 Regeneron Pharmaceuticals.
  Terms of Use:Used with permission.
  URL:https://www.regeneron.com/